Financial support for the treatment of rare diseases is proposed under RAN, not under Ayushman Bharat PMJAY.

New Delhi (Kalinga Voice): Financial support for the treatment of rare diseases is proposed under the Umbrella Scheme of Rashtriya Arogya Nidhi (RAN) and not under Ayushman Bharat PMJAY. It is said in clarification by the Ministry of Health and Family Welfare Ministry This clarification is with regard to the recently published news article in a newspaper stating that patients with rare diseases will get treatment under the Ayushman Bharat scheme of the Government.

  In this regard, it is clarified by the Ministry that in the recently notified “National Policy for Rare Diseases 2021”, there is a provision for financial support upto Rs. 20 lakhs under the Umbrella Scheme of Rastriya Arogya Nidhi for treatment, of those rare diseases that require a one-time treatment (diseases listed under Group 1 in the rare disease policy). Beneficiaries for such financial assistance would not be limited to BPL families, but the benefit would be extended to about 40% of the population, who are eligible under Ayushman Bharat- Pradhan Mantri Jan Arogya Yojana (PMJAY). This financial support for the treatment of rare diseases is proposed under the Umbrella Scheme of Rashtriya Arogya Nidhi (RAN) and not under Ayushman Bharat PMJAY.

Besides, the Rare Diseases Policy also envisages a crowdfunding mechanism in which corporates and individuals will be encouraged to extend financial support through a robust IT platform for the treatment of rare diseases. Funds so collected will be utilized by Centres of Excellence for treatment of all three categories of rare diseases as a first charge and the balance financial resources can also be used for research.